“Am I sick because of COVID-19 or my blood is just acting up?” I asked myself. Having a Myeloproliferative Neoplasm (MPN) during COVID times is quite scary. My first experience was during the beginning of the pandemic around March. It took three days, just high fever, body ache, and chills, then it went away. Then, again, around summer, same feeling. Then, the last one was just two days ago, same feeling. And, they only last between two to three days.
At this point, I no longer care. I have a blood draw next week so if the results are quite extraordinary, then it is probably my blood messing with me.
However, it seems my fatigue is back. Before my treatment, I would go to sleep early because I was just so tired. Then, when I found out that I have MPN, the fatigue made sense because it was one of the symptoms. After the treatment, taking Jakafi helped the fatigue. I got some energy back. But these past few weeks, the same feeling of fatigue is back. I just want to sleep and I have no energy. And if I go to work, I would be super exhausted right after. Luckily, there are times where I can take a nap between my work hours.
Nonetheless, I am thankful.
My nephew asked me why do I keep my medicine caps. I want to keep them as a reminder how far I’ve gone with my MPN. I have joined Facebook groups where I can share stories and encourage others. Right now, I am just hopeful. I know that I will be alright even if I get bad results. I am in His hands. I’m good.
Provider's Hands, Heart, and Mind 